Provides educational materials, medical and information via a global network of volunteers who offer hope to those struggling with bone marrow failure diseases.

Tags: national disability organization, aplastic anemia, myelodysplastic syndrome, paroxysmal nocturnal hemoglobinuria, bone marrow failure diseases, blood disorder organization

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Tags: national disability organization, thalassemia, autoimmune disorder organization, genetic disorder organization, blood disorder organization

General overview of the different types of sickle cell anemia from Ehow

Tags: rare disease, rare disorder, rare disorders, sickle cell anemia overview, sickle cell anemia treatment options, blood disorder, genetic defect, disability definitions

Our mission is to find effective treatments and a cure for Fanconi anemia and to provide education to affected families worldwide. Includes a family network and family web page section.

Tags: national disability organization, Fanconi Anemia, heart disorder organization, leukemia, genetic disorder organization, aplastic anemia, blood disorder organization

Teaching a child with sickle cell anemia to communicate his pain levels and other symptoms will help adults get the child medicated more quickly, which will alleviate symptoms more quickly. From eHow (less)Teaching a child with sickle cell anemia to communicate his pain levels and other symptoms will help adults get the child medicated more quickly, which will alleviate symptoms more quickly. From eHow ... (more)

Tags: sickle cell anemia parenting, blood disorder

LLS is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information services. (less)LLS is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and t... (more)

Tags: national disability organization, Leukemia, Lymphoma, cancer organization, blood cancer, blood disorder organization, myelodysplastic syndrome, myeloproliferative disorder

Very family and community oriented site with a Childhood Cancer Advocacy network. CureSearch unites the world's largest cancer research organization, the Children's Oncology Group and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure. (less)Very family and community oriented site with a Childhood Cancer Advocacy network. CureSearch unites the world's largest cancer research organization, the Children's Oncology Group and the National Ch... (more)

Tags: national disability organization, cancer organization, bone marrow transplant, leukemia, blood disorder organization

Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.

Tags: national disability organization, rare disorder, rare disease, blood disorder organization, genetic disorder organization, hemophilia

A comprehensive resource for those with ITP immune (idiopathic) thombocytopenic purpura and other platelet disorders. Includes discussion groups, resources, research, newsletter and more.

Tags: national disability organization, autoimmune disorder organization, platelet disorder organization, rare disease, rare disorder, blood disorder organization, immune thrombocytopenic purpura, idopathic thrombocytopenic purpura, ITP

The Severe Chronic Neutropenia International Registry (SCNIR) was established in 1994 to monitor the clinical course, treatment, and disease outcomes in patients with severe chronic neutropenia (SCN). (less)The Severe Chronic Neutropenia International Registry (SCNIR) was established in 1994 to monitor the clinical course, treatment, and disease outcomes in patients with severe chronic neutropenia (SCN).... (more)

Tags: national disability organization, rare disorder, rare disease, genetic disorder organization, chronic disorder organization, blood disorder organization, neutropenia, kostmann syndrome, cyclic neutropenia, idiopathic neutropenia, autoimmune neutropenia