An extensive library on specific conditions, lifestyle improvement and information for the renal community. From AAKP

Tags: national disability organization, kidney disorder organization, cystinosis, kidney disease, oxalosis, hyperoxaluria

Comprehensive resource for families and individuals on diabetes information and management. includes a section for kids called Planet D and message boards for both children and adults.

Tags: national disability organization, diabetes organization, autoimmune disorder organization, kidney disorder organization, diabetes listserv, diabetes forum

The mission of the American Kidney Fund is to fight kidney disease through health education and prevention efforts.

Tags: national disability organization, cystinosis, kidney disorder organization, kidney disease, oxalosis, hyperoxaluria

Find information about characteristics associated with the disorder and be able to view photos of defined features that often manifest themselves in those affected by BWS.

Tags: national disability organization, overgrowth syndrome, growth disorder organization, rare disorder, rare disease, wilms tumor, medullary sponge kidney, diabetes insipdus

An email list for children and teenagers who have cystinuria or who live with someone with cystinuria. Part of the Cystinuria Support Network ww.cystinuria.org

Tags: cystinuria forum, cystinuria listserv, rare disorder, rare disease, kidney disorder organization

Dedicated to advocating research, providing family assistance and educating the public and medical communities about Cystinosis. Includes a family and teen listserv

Tags: national disability organization, fanconi syndrome, rare disorder, rare disease, kidney disorder organization, cystinosis

Information resource for Cystinuria.

Tags: national disability organization, Cystinuria, kidney disorder organization, rare disorder, rare disease

Yahoo group for the Cystinuria Support Network. Since no one can understand the issues like those who are sharing the same experience, this Network will allow us to come together with our strengths, hopes and concerns to offer support and understanding to each other. The official homepage of the Cystinuria Support Network is at www.cystinuria.com (less)Yahoo group for the Cystinuria Support Network. Since no one can understand the issues like those who are sharing the same experience, this Network will allow us to come together with our strengths, ... (more)

Tags: cystinuria forum, cystinuria listserv, rare disorder, rare disease, kidney disorder organization

The OHF is the only organization in the world dedicated to improving the care and treatment and finding a cure for Oxalosis, PH and related stone diseases. Our website is your gateway to a wealth of information. We have structured the website to answer your questions, provide resources and opportunities for you to join our family and find a cure! (less)The OHF is the only organization in the world dedicated to improving the care and treatment and finding a cure for Oxalosis, PH and related stone diseases. Our website is your gateway to a wealth of i... (more)

Tags: national disability organization, oxalosis, hyperoxaluria, kidney disorder organization, primary hyperoxaluria, rare disorder, rare disease, genetic disorder organization

The PKD Foundation is the only organization, worldwide, dedicated to fighting polycystic kidney disease (PKD). Includes info on clinical trials.

Tags: national disability organization, polycystic kidney disease , rare disorder, rare disease, genetic disorder organization, kidney disorder organization, autosomal dominant kidney disorder, autosomal recessive kidney disorder