AAF will empower amputees, their families, and care providers to make informed decisions by providing them information, referral, peer counseling, literature, and education. Has a referral service.

Tags: national disability organization, limb loss, limb disorder organization, amputee organization, amputation

ACA offers advocacy, education and several youth camp programs.

Tags: national disability organization, amputee organization, amputation, limb loss, limb disorder organization

The Foundation for Nager and Miller Syndromes (FNMS) is an international group dedicated to helping those affect by these two similar genetic conditions which involve severe facial and limb anomalies, but do not usually affect intellect. Includes a forum. (less)The Foundation for Nager and Miller Syndromes (FNMS) is an international group dedicated to helping those affect by these two similar genetic conditions which involve severe facial and limb anomalies,... (more)

Tags: national disability organization, nager syndrome, miller syndrome, FNMS, rare disorder, rare disease, genetic disorder organization, limb disorder organization

An online resource for families and friends of children with limb differences. Includes a discussion forum.

Tags: national disability organization, limb disorder organization, limb loss, amputee organization, amputation

The MHE Coalition is a 501(c)(3) non-profit organization formed in 2000 to provide information to people living with the rare bone disorder, Multiple Hereditary Exostoses, also known as Multiple Osteochondromas and Hereditary Multiple Exostoses. By funding and participating in research, awarding educational grants to help qualified orthopaedic residents attend the Annual Baltimore Limb Deformity Course, and by working with our members and members of the medical and scientific communities, the MHE Coalition is committed to finding ways to improve the quality of life of those who live with MHE. (less)The MHE Coalition is a 501(c)(3) non-profit organization formed in 2000 to provide information to people living with the rare bone disorder, Multiple Hereditary Exostoses, also known as Multiple Osteo... (more)

Tags: national disability organization, exostoses, multiple hereditary exostoses, Multiple Osteochondromas, MHE, forum, genetic bone disorder, genetic disorder organization, rare disorder, rare disease, limb disorder organization

Provides information to individuals with Moebius syndrome and their families, promotes understanding of Moebius syndrome, and advocates for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. (less)Provides information to individuals with Moebius syndrome and their families, promotes understanding of Moebius syndrome, and advocates for scientific research to advance the diagnosis and treatment o... (more)

Tags: national disability organization, moebius syndrome, craniofacial disorder organization, limb disorder, jaw deformity, limb deformity, cranial nerves, swallowing disorder, rare disease, rare disorder, neurological disorder organization